Cystic Fibrosis: Patients ‘ecstatic’ as medication approved in NI

Liam McHugh’s daughter Rachel was diagnosed with CF in 1992.

He said that he, and other parents of children with the disease, are “absolutely ecstatic” about the latest news.

“The CF community in Northern Ireland are over the moon about the whole thing,” he told BBC News NI.

“This is a big, big announcement and we’re all very pleased about it.”

The initial guidance from NICE stated patients already taking Kaftrio, Symkevi and Orkambi would have been kept on them, but they would not be prescribed for new CF patients, including children.